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Thursday, March 19, 2009

More About Bree

The doctors think that Bree has pseudoseizures. According to the medical dictionary, psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures. Paroxysmal nonepileptic episodes can be either organic or psychogenic. Syncope, migraine, and transient ischemic attacks (TIAs) are examples of organic, nonepileptic paroxysmal symptoms. The seizures are very real and involuntary. They may be harder to control because they do not respond to the usual non-seizure medications. There are treatments but, as of tonight, David had not learned from the doctors what those might be. They do have an around-the-clock nurse stationed in the room now and her observations may be helpful to the medical staff. David had been doing a lot of the care himself and was having a difficult time getting a stat crew into her room. He said they told him that it just seemed like a long time to him but he said it was a long time. Sometimes stress can be a trigger but the seizure response is much like a migraine, there are many different triggers and, I am supposing (but am not certain), it will take a bit of time for the doctors to find the stressors. This is an involuntary illness and the seizures cannot be controlled by strength of will. Given my choice of response, and I am certain Bree feels the same way, I would take migraines over this. LHT had experience with a friend who had seizures and he said it is obvious to him that Bree's are very much like his childhood friend's. He had epileptic seizures.

Helen wrote: Dearest family: thank you for the update. David's and Bree's names are on the prayer rolls of the 3 valley temples. On Monday I put them on the Draper Temple prayer roll. I did read in the paper that the Draper Temple is open for patrons starting Monday. You may have read in last weeks Church News- the Salt Lake Temple will be open on Mondays from 7 a.m.-11 a.m. starting the 6th of April. Enjoy the dedication tomorrow.

Thank you for keeping me informed. I am keeping Nanci informed by sending a copy of your e-mail to her. Please know David's, and Bree's names are on the prayer rolls of the 3 valley temples, on Monday I will put them on the Draper Temple also- I read an article in the paper that it will be open on Monday for patrons. You may have seen the article in the Church News Saturday last about the Salt Lake Temple will be open on Mondays from 7.a.m.-11 a.m. starting on Monday 6th April. Enjoy the dedication tomorrow. Love to each of you. Love Helen

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